807 Children's Way, Jacksonville, FL 32207 (904) 697-3686
Did You Know...?
Folic Acid
Folic Acid is a common water-soluble B vitamin, which has been shown to reduce the risk of having a child born with spina bifida by more than 70%.
Helpful Links
Guardians of Hydrocephalus Research Foundation
2618 Avenue Z; Brooklyn NY 11235; Telephone: 718-743-4473;
Web: http://ghrf.homestead.com/ghrf.html
Hydrocephalus Association
870 Market St, Ste 955; San Francisco, CA 94102; 415-732-7040 or 888-598-3789;
E-mail: info@hydroassoc.org; Web: http://www.hydroassoc.org/
National Hydrocephalus Foundation
12413 Centralia Rd; Lakewood, CA 90715-1653; 888-857-3434;
E-mail: hydrobrat@earthlink.net; Web: http://www.nhfonline.org/
Hydrocephalus Foundation, Inc. (HyFI)
910 Rear Broadway; Saugus, Massachusetts 01906; (781) 942-1161;
Web: http://www.hydrocephalus.org/
World Arnold Chiari Malformation (ACM) Association
31 Newtown Woods Road; Newtown Square, PA 19073; 610-353-4737;
Web: http://www.pressenter.com/~wacma/
Latex Allergy Links
Web only: http://www.latexallergylinks.org/
Learning Disabilities Association of America
4156 Library Rd; Pittsburgh PA 15234; 412-341-1515;
Web: http://www.ldanatl.org/
National Center for Learning Disabilities
381 Park Avenue South; Suite 1401; New York NY 10016; 212-545-7510;
Toll-free: 888.575.7373; Web: http://www.ncld.org/
Sibling Support Project
Don Meyer, Director; 6512 23rd Ave NW, #213; Seattle, WA 98117; 206-297-6368; donmeyer@siblingsupport.org; Web: http://www.siblingsupport.org/
National Father's Network
16120 N.E. 8th Street; Bellevue, WA 98008-3937; 425-747-4004, ext. 4286;
E-mail: greg.schell@kindering.org;
Web: http://www.fathersnetwork.org/
Recommended Reading
Children With Spina Bifida: A Parent's Guide (link to Amazon.com)
by Marlene Lutkenhoff; Published by Woodbine House, 1st edition (November 1, 1999); ISBN: 0933149603
Living With Spina Bifida: A Guide for Families and Professionals (link to Amazon.com)
by Adrian Sandler Published by Univ of North Carolina Press; Revised 2nd Edition, 2003; ISBN: 0807855472
You can read an excerpt from the book here: http://uncpress.unc.edu/chapters/sandler_living.html
Spinabilities : A Young Person's Guide to Spina Bifida (link to Amazon.com)
by Marlene Lutkenhoff (Editor), Published by Woodbine House; Publication date: February 1, 1997; ISBN: 0933149867
Giant Steps: The Story of One Boy's Struggle to Walk (link to Amazon.com)
by Gilbert M. Gaul; Published by St Martins Pr; Publication date: January 1993; ISBN: 0312087292
*note - out-of-print but you can find used copies
Teaching the Student With Spina Bifida
by Fern L. Rowley-Kelly , Donald H. Reigel (Editor); Published by Paul H Brookes Pub Co; Publication date: August 1992; ISBN: 1557660646
*note - out-of-print but you can find used copies
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